Chronic fatigue syndrome can also be referred to as M.E (myalgic encephalomyelitis)
CFS/M.E causes persistent fatigue that affects everyday life and doesn't go away with sleep or rest. It is an illness which affects a persons nervous system. CFS is a complex illness which can be suddenly triggered by a viral infection or can slowly develop over time. No one really knows what causes it.
I honestly thought there must be something seriously wrong me feel to feel this unwell. I have had a lot of blood tests done, an MRI, a heart monitor and an endoscopy. I have seen a general specialist, a ENT twice and a neurologist. When all the tests were coming back fine I actually felt disappointed. Which is horrible to want there to be something wrong with you. The thing is, not knowing what was wrong was even worse to deal with. How can you and others around you accept your actually really ill when there's no medical proof. I had all these symptoms and no answers. It wasn't until I dug deeper into CFS the dots started to connect and I found that my symptoms fit and my GP agreed.
It is not a straightforward illness with a cure, and it affects people differently. How I experience it could be similar or very different to you. As well as fatigue, other general features of CFS are:
•it lasts for 6 months or more
•it isn't caused by another medical condition
•it is not due to constant exertion
•it is not relieved by rest
•disrupts the patients normal life and stops them from functioning
Everyday I feel like crap to put it plainly. I'm exhausted from the minute I wake up in the morning and for the rest of the day I have very little energy. I go for 2/3 short 10 minute walks a day just now but that's about all I can manage. Everyday I have a headache which can get worse and develop into a migraine occasionally. Some people describe having brain fog. For me I feel quit dizzy and there a lot of pressure in my head. My vision is also affected. I feel like I am not seeing in HD and everything's out of focus. It may be because of the dizziness but I also feel nauseous and have to take sickness pills everyday otherwise I probably will vomit.
I have noticed is that my senses are more heightened. Mainly I am very sensitive towards sounds. If I am somewhere in public the sounds around start getting louder and louder and its the feeling you get like nails on a chalkboard. I also can't regulate my temperature very well I get hot very easily even when other people are freezing, to the annoyance of my family as I hate the heating being on. I also get really bad pains in my neck, shoulders and back everyday. Before I got CFS I had problems with IBS and they have gotten worse now, I've recently been getting heartburn and acid which has been so horrible. Another symptom which is quite a scary one is that I can get chest pains and flutters. The doctor says it is post viral inflamation. I have found that if I don't eat every few hours I feel lightheaded and shaky and my heartrate goes up. It's as if I have low blood sugar but my blood sugar is fine. Haven't found any explanation for this yet, it could just be me that experiences it.
Worth mentioning that I can have difficulty concentrating after a while. When I am reading/writing, after 20 minutes normally I have to stop. I know I am not the best writer but I enjoy it and I might forget what I am trying to say half way through a post but I hope it is still ok for you guys reading it.
Something I haven't mentioned yet is that I also suffer quite badly for anxiety now. It started after I became unwell and has caused me to have panic attacks before. I'm going to talk about this more in a separate post though.
I hope this has given you more of an insight into what CFS is like to live with on a daily basis and that it is more than just fatigue for a lot of people. It can be a very debilitating illness which has stopped me from working for 1 year and in that time I have done very little socialising as well. I didn't think it was possible to actually spent so much time within the same 4 walls but I've done my best to make my room a comfortable and relaxing place.
Would be interested to see if anyone else experiences similar symptoms to me. You forget that your not alone and there are other people out there who are going through the same thing.